改變血友病 (Changing HaemophiliaTM)

諾和諾德不僅只是提供藥品,改變血友病是諾和諾德對血友病治療中未被滿足的需求所做出的承諾。

血友病是一種嚴重的罕見疾病

血友病是一種嚴重的罕見疾病,世界各地大約每 1萬人中有 1人罹患此症。許多血友病患者仍然未被診斷或未得到充分的治療。即使得到了治療,他們也有可能因關節出血而承受長期疼痛,以致活動受限;當治療不足或根本無法得到治療時,他們則可能在年幼時就失去了生命。

改變血友病是諾和諾德對血友病治療中未被滿足的需求所做出的承諾。我們致力於在未來讓每一位血友病患者都得到確切的診斷,並盡可能減少疾病對其生活的束縛。

 

改變血友病,我們的重點領域包括: 

 

 

Changing Haemophilia is Novo Nordisk's commitment to address the unmet needs in haemophilia care, beyond medicine

Haemophilia is a rare and serious disease

Haemophilia is a rare and serious disease affecting approx. 1 out of 10,000 people around the world. Many people with haemophilia are still undiagnosed or inadequately treated. Even when treated, people may suffer from chronic pain and limited mobility mainly due to bleeds in the joints, and if undertreated or not treated at all, risk dying at a young age.

Driving change in haemophilia 

Since Novo Nordisk was founded more than 90 years ago, we have been driving change to defeat chronic conditions. This includes three decades of improving lives of people with haemophilia through support to improved diagnosis, treatment and care.

Our key contribution 

Our key contribution is to discover and develop effective and safe medicines for people with haemophilia and other rare bleeding disorders. We offer a broad and innovative range of products and have a rich research/development pipeline to ensure we are in the forefront of finding the next generation of medicines.

Addressing unmet needs beyond medicine 

But to truly change haemophilia, we need to do more than supply the right medicines. With our Changing Haemophilia™ commitment we aim to address the unmet needs in haemophilia. Together with our community partners, we work to advocate for, and create better access to, diagnosis and multidisciplinary care. We aim for better joint health and mobility including a strong focus on well-being for people living with haemophilia.

We work towards a future where everyone with Haemophilia is diagnosed. and can live a life with as few limitations as possible.

Our three focus areas are:

•  Science. Find out more

•  Awareness and access to care. Find out more

•  Joint outcomes. Find out more


諾和諾德血友病科學研發

我們的主要貢獻

 

我們的主要貢獻在為血友病及其它罕見出血性疾病患者,研發安全有效的藥品。我們提供廣泛的創新產品,並擁有豐富的研發產品線,以確保我們的科學研發處於新一代治療手段的最前端。

關於血友病的科學研發


改變血友病, 接受醫療照護, 墨西哥

關注藥品之外未被滿足的需求

要真正改變血友病,我們要做的不僅僅是提供好的藥品。通過改變血友病這一承諾,諾和諾德致力於處理血友病領域未被滿足的需求。我們與該領域的合作夥伴攜手宣導疾病診斷與多學門治療,並為創造更高的藥品可近性而努力。我們致力於幫助血友病患者實現更好的關節健康及活動能力,並關注患者的生活品質。我們要努力讓每一位血友病患者未來都能得到確切的診斷,並盡可能減少疾病對其生活的束縛。. 


諾和諾德血友病基金會

諾和諾德血友病基金會

諾和諾德血友病基金會(NNHF)通過與地區及國際血友病群體成員合作,使改變成為現實。NNHF為造福血友病及相關出血性疾病患者而工作,目標是改善患者治療可近性、治療水準和生活品質。根據統計,全球75%的患者生活在發展中國家,那裡仍缺少適當的診斷與治療,因此他們也是我們共同關注的焦點。

諾和諾德血友病基金會


諾和諾德改變血友病

Infographic


展現你對「改變血友病TM」的支持並分享血友病的圖表資訊

下載血友病的圖表資訊 (PDF)

 

Facts and figures